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Eigendoms- en gebruiksrechten van genetische informatie

Tijdschrift Beleid en Maatschappij, Aflevering 4 2020
Trefwoorden genetic information, genoeconomics, insurance of longevity risk, risk selection, Regulation
Auteurs Prof. dr. Frank den Butter
SamenvattingAuteursinformatie

    In 2003, the WRR suggested in the ‘Deciding on Biotechnology’ report that individuals should not be given ownership of their personal genetic information (DNA) to prevent risk selection and exclusion. Yet, that does not seem politically and ethically feasible. From that perspective, the research question of this article is how to regulate ownership and use of genetic information. Better predictability of health and longevity risk, through genetic information and thanks to new developments in geno-economics, possibly in combination with ‘big data’, makes risk selection by insurance companies attractive. That holds more specifically for the pension system. In addition to insurance for investment risk, the pension system also offers insurance for longevity risk. In itself, selection for longevity risk via premium setting is not unwarranted since the ‘bad risks’ with long life expectancy are the highly educated, so that the current implicit risk solidarity in pension insurance in The Netherlands, unlike in health insurance, brings about more inequality. But an unrestricted risk selection does raise ethical and social questions and does not fit into the new pension system in the Netherlands. That is why good and extensive legislation is needed for property rights and the utilization of genetic information of individual citizens. A similar focus on regulation is also in order for the use of DNA information of the government in criminal cases. Here the question is what additional options the government should have to use the information to solve crimes.


Prof. dr. Frank den Butter
Prof. dr. Frank den Butter is hoogleraar algemene economie aan de Vrije Universiteit, Amsterdam. Van 1998 tot 2003 was hij lid van de Wetenschappelijke Raad voor het Regeringsbeleid.
Artikel

Access_open Een ontspannen perspectief op residentiële segregatie

Tijdschrift Beleid en Maatschappij, Aflevering 4 2020
Trefwoorden residential segregation, Framing, welfare regimes, structural factors, individual preferences
Auteurs Prof. dr. Sako Musterd
SamenvattingAuteursinformatie

    In the Netherlands and surrounding countries, there is reason to ask the question whether levels of segregation according to country of origin (mainly non-western) and in terms of socioeconomic position (mainly social arrears) are sufficiently high to legitimate anti-segregation policy. When will segregation become problematic? If segregation is regarded a problem, what, then, would be the best remedy? Spatial intervention? Or broader societal intervention? In this article developments and mechanisms will be discussed that lead to segregation; also political views on segregation and the framing of segregation will be scrutinized. A confrontation of knowledge, insights, visions, and framings offers material for new perspectives on residential segregation and is reason to argue for a more relaxed attitude towards segregation. We should acknowledge that the process of matching households to residential environments results in some – generally unproblematic – segregation. Only if segregation causes problems that pass certain intensity and/or a certain spatial range, non-spatial or spatial interventions are becoming a necessity. Levels of segregation are relatively moderate still. We ought to be more aware of the fact that strong negative framing actually stimulates segregation, social exclusion, division, discrimination, marginalisation, stigmatisation, fear, estrangement, and the development of first- and second-rate citizens.


Prof. dr. Sako Musterd
Prof. dr. Sako Musterd is hoogleraar stadsgeografie aan het Centre for Urban Studies, Universiteit van Amsterdam. www.uva.nl/profiel/s.musterd
Reflectie & debat

Dierenrechten in de Grondwet?

Tijdschrift Beleid en Maatschappij, Aflevering 3 2020
Trefwoorden Animal Rights, Constitution, Utilitarianism, Ethology, Veganism
Auteurs Mr. ing. Sierd Hans de Jong
SamenvattingAuteursinformatie

    Two petitions on the internet strive to include ‘animal rights’ in the Dutch Constitution. Jeremy Bentham stipulated that animals should not be denied the right to happiness, because they suffer. The Dutch philosopher Eskens made a plea to grant animals the same fundamental rights as humans. Theoretically, this leads to special, bizarre and sometimes paradoxical situations. This indicates that the logic in this theory is missing.
    In the past fifty years, ethological science made enormous progress and we have learned much more about the emotions and the behaviour of animals. Animals travel consciously through ‘time’ and hurt their brains in the search for knowledge and experiences. But this does not yet make humans and animals equal. Within the legal discourse there is no place for universal rights for animals because these must always be asserted through human intervention. The energy to maintain the bureaucracy Eskens proposes should be used to formulate animal protection as a human obligation.


Mr. ing. Sierd Hans de Jong
Mr. ing. Sierd Hans de Jong is sinds 1 januari 2019 gepensioneerd senior inspecteur van de Nederlandse Voedsel- en Warenautoriteit.
Artikel

De Algemene wet gelijke behandeling als mijlpaal in de geschiedenis van de Nederlandse homo-emancipatie

Tijdschrift Beleid en Maatschappij, Aflevering 3 2020
Trefwoorden equal treatment legislation, gay and lesbian history, homosexual teachers, religious schools, sexual orientation discrimination
Auteurs Drs. Joke Swiebel
SamenvattingAuteursinformatie

    The General Equal Treatment Law – adopted in 1994 – is a landmark in the history of homosexual emancipation in the Netherlands. It took two decades before the first proposals for a legal ban of discrimination on the grounds of sexual orientation would be transformed into law. Background of this controversy is the clash between the equalityprinciple and the freedom of education. The compromise reached – the so-called single fact-construction – however sent a double message: being gay was not a justified reason for unequal treatment, but some forms of behaviour were incorporated as a legal exception. It took another twenty years before this flaw in the law would be changed.
    This article analyses the political debates behind these legal developments. What was the problem that the various drafts for this new legislation were supposed to solve? Which definitions of discrimination on the basis of homosexuality were used and how did they change over time? The adoption of the law and its ‘reparation’ twenty years later are mainly a question of symbolic politics. They reflect the development of the growing acceptance of homosexuality in Dutch society and have stimulated its further growth. Their actual legal effects seem far less important.


Drs. Joke Swiebel
Drs. Joke Swiebel studeerde politicologie. Zij werkte negen jaar aan de Universiteit van Amsterdam en 22 jaar als beleidsambtenaar voor de Rijksoverheid. Daarna (1999-2004) was zij lid van het Europees Parlement voor de PvdA. Een uitgebreidere versie van dit artikel is te vinden op https://jokeswiebel.nl/
Artikel

De Verblijfsregeling Mensenhandel in de praktijk: over oneigenlijk gebruik en niet-gebruik

Tijdschrift Beleid en Maatschappij, Aflevering 4 2014
Trefwoorden human trafficking, public policy, crime policy, policy misuse, non-take up
Auteurs Dr. Jeanine Klaver en Prof. dr. Joanne van der Leun
SamenvattingAuteursinformatie

    In line with international and national legislation, the Netherlands offers certain services, including a temporary residence permit, to third country nationals who have fallen prey to human traffickers. Over the years, concerns have been often expressed about the perceived misuse of this regulation by foreigners who aim at legalising their stay. Based on interviews and file analysis the present article seeks to provide insight into to what extent it is possible to measure this misuse and the policy implications of the findings. In addition, the authors take into account non-use of the programme. The article confirms existing worries about misuse, provides indicators for misuse, but also concludes that at the level of individual cases practitioners cannot discern misuse from rightful use. At the same time, there are also groups that fall outside the reach of the programme. The article concludes with some policy recommendations on the basis of the findings.


Dr. Jeanine Klaver
Dr. Jeanine Klaver is manager onderzoek bij Regioplan Beleidsonderzoek.

Prof. dr. Joanne van der Leun
Prof. dr. Joanne van der Leun is hoogleraar criminologie aan de Universiteit Leiden.
Artikel

Over rijdende treinen en vallende dominostenen: het rookverbod in de Nederlandse horeca

Tijdschrift Beleid en Maatschappij, Aflevering 2 2014
Trefwoorden smoking ban, regulation, support, effectiveness, explanations
Auteurs Dr. Heleen Weyers en Willem Bantema MSc
SamenvattingAuteursinformatie

    In the near future, the Dutch government intends to change the rules relating to smoking bans in the hospitality industry again. After a complete ban, coming into force in July 2008, and introducing an exception for small bars in June 2011, the complete ban will return this year. This article describes the law regarding smoking bans in the Netherlands, and reports along researches of the relevant authority and a commercial research institute the effectiveness of the bans. From these findings it becomes clear that the hospitality industry did a good job in complying with the bans. But there is one exception: small bars. Next we explain, based on the ideas of Kagan and Skolnick and Elias the effectiveness of smoking bans.


Dr. Heleen Weyers
Dr. Heleen Weyers is universitair docent bij de Vakgroep Rechtstheorie, Rijksuniversiteit Groningen. E-mail: h.a.m.weyers@rug.nl.

Willem Bantema MSc
Willem Bantema, MSc is promovendus bij de Vakgroep Rechtstheorie, Rijksuniversiteit Groningen. E-mail: w.bantema@rug.nl.
Casus

Transparantie in het wetgevingsproces

Internet en de mogelijkheid van een moderne volksvergadering

Tijdschrift Beleid en Maatschappij, Aflevering 4 2013
Auteurs Mr. Reijer Passchier
SamenvattingAuteursinformatie

    In this feature authors discuss recent research findings that are of interest to readers of Beleid en Maatschappij.


Mr. Reijer Passchier
Reijer Passchier is als promovendus en junior docent verbonden aan de afdeling Staats- en bestuursrecht van de Universiteit Leiden, e-mail: r.passchier@law.leidenuniv.nl, website: www.reijerpasschier.nl.

    This article examines the impact of the EU on the content of policy. It analyses two cases in which the EU affected Dutch policies in different ways: in the case of packaging waste policy the EU exerted direct influence through EU legislation, whereas in the case of railway policy, the EU only had an indirect impact through policy models. Nevertheless, the impact of the EU was greater in the railway policy case than in the packaging waste case. This suggests that domestic political processes are more important in explaining the impact of the EU on policy content, than the degree of legal adaptation pressure. In addition, the article shows that the EU has affected the policy networks in the area of packaging waste policy, even though Dutch corporatist structures have shown remarkable resilience and have even been strengthened by the implementation requirements of EU legislation in this field.


Markus Haverland
Dr. Markus Haverland is docent/onderzoeker bij het departement Bestuurskunde van de Universiteit Leiden. Adres: Pieter de la Court gebouw, Postbus 9555, 2300 RB Leiden, e-mail: mhaverland@fsw.leidenuniv.nl

    This article is the introduction to this special issue in which the Europeanisation of Dutch polity, politics and policy forms the central focus of attention. The main question we address in this special issue is to what extent the Netherlands has changed under the influence of processes of Europeanisation. This article first discusses the state-of-the-art Europeanisation literature; then it sets out to discuss four problems with this literature. Based on the insights generated by the contributors to this special issue, the authors conclude that for a better understanding of processes of Europeanisation, the EU should no longer be seen as an actor, but rather as an (cluster of) arena(s) in which a variety of actors (member states, EU institutions, interest groups, et cetera) are trying to achieve their political goals.


Sebastiaan Princen
Verbonden aan de Utrechtse School voor Bestuurs- en Organisatiewetenschap van de Universiteit Utrecht Adres: Bijlhouwerstraat 6, 3511 ZC Utrecht, e-mail: s.princen@usg.uu.nl

Kutsal Yesilkagit
Verbonden aan de Utrechtse School voor Bestuurs- en Organisatiewetenschap van de Universiteit Utrecht Adres: Bijlhouwerstraat 6, 3511 ZC Utrecht, e-mail: k.yesilkagit@usg.uu.nl

    At the start of the century, the organisational fields belonging to the public employment service and social security, which previously were strictly institutionally separated with their rules and norms, have been brought under one umbrella or network structure in the Netherlands. We discuss how within this structure adaptive and reflexive forms of governance enhance information feedback and simultaneous learning processes both at the top and in the execution level of social security. Based upon document study, interviews and a case study of a sectoral experiment on integral service provision, we illustrate which learning elements occurred in bridging the planning and control cycle of New Public Management at the top with the horizontal mutual adjustment between organisations at decentral level.


Marc van der Meer
Marc van der Meer is directeur van het Expertisecentrum Beroepsonderwijs (ECBO). Correspondentiegegevens: Dr. M. van der Meer Expertisecentrum Beroepsonderwijs Pettelaarspark 1 5216 PC Den Bosch marc.vandermeer@ecbo.nl

Bert Roes
Bert Roes is senior adviseur bij het College voor Arbeidszaken van de Vereniging van Nederlandse Gemeenten (VNG).
Artikel

Etatisme in de polder?

Tijdschrift Beleid en Maatschappij, Aflevering 3 2008
Auteurs Berend Snijders en Femke van Esch
SamenvattingAuteursinformatie

    Decision-making in the Netherlands is generally characterised as (neo) corporatist. Whether stakeholders enjoy a similar level of access to, and influence on the formulation of the national position, which the Dutch government advocates in Brussels, remains however unclear. This article aims at providing a first tentative answer to this question by studying the formulation of the Dutch position on EU resolution 882/2004 concerning the official controls on compliance with feed and food law, animal health and animal welfare.

    In-depth analysis of this case reveals that the development process of the Dutch stance on 882/2004 was largely devoid of stakeholder-input. As such, this process may be characterised as essentially etatist rather than corporatist. Moreover, it was established – as expected – that specialised lobby groups – those that could offer additional information and expertise to the dossier team responsible for 882/2004 – were able to exert more influence than general advocacy groups. Finally, the hypothesis that openness leads to more stakeholder-influence was not confirmed in this case. To the contrary, only during private bilateral discussion did a selection of business organizations manage to convince the dossier team of the benefits of limited border controls.


Berend Snijders
Berend Snijders is promovendus aan de Utrechtse School voor Bestuurs- en Organisatiewetenschap (USBO) van de Universiteit Utrecht. Correspondentiegegevens: Drs. Berend Snijders Universiteit Utrecht Utrechtse School voor Bestuurs- en Organisatiewetenschap Bijlhouwerstraat 6 3511 ZC Utrecht B.J.B.Snijders@uu.nl

Femke van Esch
Femke van Esch is als universitair docent verbonden aan de Utrechtse School voor Bestuurs- en Organisatiewetenschap (USBO) van de Universiteit Utrecht.
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